Me in the Middle of Sleep Apnea

This post is a wee bit longer than my usual posts.  Awareness is Important!

It’s been four years since I started treatment for Severe Sleep Apnea.  It’s changed my life!  Or maybe I should say that I never realized before just how my living with undiagnosed/untreated sleep apnea over the years had affected my life.

OSA (Obstructive Sleep Apnea) is one of the most under-diagnosed conditions that can ultimately lead to serious, life-threatening consequences if left untreated.  It affects men, women and children; overweight and thin … and it has many causes.

Upon reaching my 70th birthday, what I considered to be a fairly healthy life began to spiral downward with a series of symptoms that were puzzling for both me and my doctors.  Over the years I had had what seemed to be age-related medical issues that I was quick to address for the best outcome.  Looking back, in hindsight, I can now connect the dots to what I’ve come to understand were symptoms of Obstructive Sleep Apnea.

There were times over the past 30 plus years where I struggled with low energy, feelings of depression, racing heart, nausea, fainting spells and anxiety.  Coping with everyday stresses were also complicated by the early onset of menopause in my late thirties.  Most of the time I approached these symptoms in a proactive way without medication by learning about exercise, diet and mind/body balance techniques.  Never in all my proactive approaches over the  years did I ever learn, nor was it ever brought up by the doctors I’d seen, that I might have Sleep Apnea.  There were thyroid checks, blood tests and heart tests ~ along with reassurances that nothing abnormal was found other than an insignificant tricuspid-valve leakage.  In the early Eighties it was confirmed through FSH blood tests that I was indeed in the middle of early menopause.

Then, as I approached my seventies, symptoms became more troubling.  The expected onset of spinal stenosis, along with a family history of joint replacements, were complicated by vascular symptoms in my legs where I would lose control of coordination and feeling.  There was a series of surgeries over the next years for EVLT (Edo-Venous Laser Treatment), Lumbar Laminectomy and, last but not least, THR (Total Hip Replacement).  It was while I was in the hospital right after the THR surgery that my son, a cardiologist, saw that I had stopped breathing which immediately confirmed his suspicions that I might have Sleep Apnea.  My cardiologist was contacted and a sleep study was ordered.

Up until that time, it was progressively looking like I was developing A-Fib and Tachycardia.  I was prescribed blood pressure medication and set up with a heart monitor for tracking the events where my heart rate would become so fast that I couldn’t read a pulse.  I’d be waking up many times in the night with my heart pounding so hard I could feel it in my neck.  When walking up an incline I was finding myself short of breath and was attributing it to signs of aging.  A trip to the Emergency Room after I passed out at work forced my decision to stop part-time work.  The ER doctor did all sorts of tests while I was there.  His final diagnosis was Vasovagal Syncope (fainting) and he sent me on my way.  No mention of Sleep Apnea.

Image result for jokes about sleep apnea

So, when I received the call from the Pulmonologist who prescribed the Sleep Study for me four years ago I was stunned by what she told me.  I had Severe Obstructive Sleep Apnea!  No way!  AHI 43 events per hour (stopped breathing); Sleep efficiency @ 51%; Oxygen level @ 80% (dangerous).

Sleep Apnea and Women

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Over the course of the last four years of treatment on CPAP I’ve been catching up on activities that I never had the energy for in the past.  Daily fatigue had drained me in so many ways and I thought I’d have to let go of so much that I’d hoped to do in retirement.  Well, it’s never too late!  It’s never too late to begin writing your story;  It’s never too late to begin watercolor sketching;  It’s never to late to try out on-line dating;  It’s never too late to do foreign travel;  It’s never too late to change your perspective on things; and It’s never too late to be young at heart!
This is the CPAP mask that I’ve found works best for me!  I hardly know that I’ve got it on and now my AHI is <2.0 and my oxygen level is 99%.  I wouldn’t go to sleep without it.
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All of my symptoms are gone!  No more anxiety, no more racing/pounding heart, no more fainting, no more waking up many times in the night and no more shortness of breath.  Now I get lots of restorative sleep (8 to 9 hours) and I’m dreaming again because I’m spending more time in the very important deep-sleep stages of the sleep cycles.  My blood pressure is back to normal and staying stable.  My medications have been cut in half.
So I hope my sharing my experience will encourage anyone who notices some of these symptoms to ask about having a sleep study done.  And if you are diagnosed with Moderate or Severe Sleep Apnea I hope that you’ll hang in there with the CPAP treatment.  It’s all worth it ….. and it may save your life.
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~ Update ~

The cardiac symptoms have returned in full force after four years on CPAP treatment where I had no Atrial Fib/Atrial Flutter and Atrial Tachycardia symptoms. I spent 5 hours in the ER this week with high blood pressure and high heart rate. The ER team did a great job in stabilizing my heart rate and now it’s a matter of just finding the best medication adjustment for this new development.
I can’t emphasize enough the importance of diagnosing Obstructive Sleep Apnea early on and to encourage anyone in staying with the CPAP treatment. I really believe I wouldn’t have developed this heart condition if mine was discovered sooner. I’ve been blessed in these past four years where treatment gave me back the energy and life that I was meant to have. 🙂

17 thoughts on “Me in the Middle of Sleep Apnea

  1. My husband and I had dated a couple of years when we moved in together. Up until then, I had never spent many nights with him so had not noticed how bad his sleep apnea was. I finally got him to see a doctor and he would stop breathing over 100 times an hour. He has done so well with his cpap and feels so much better. People don’t realize how bad sleep apnea is for all parts of your body. Good eye-opening post.

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    • Thank you! Glad your husband is staying with his CPAP treatment and feeling so much better. We need to spread the word because, you’re right, it affects the body in so many ways.

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  2. I worked for a breathing specialist a while ago Mary Lou and there are more and more people getting CPAP machines to help them at night. I think my husband could benefit from one – he snores a lot and is tired during the day. My friend’s husband uses one and she says it’s made an amazing difference. I might start mentioning it to him more often now I see how much of a difference it makes.
    #MLSTL 🙂

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    • I had no idea, Leanne! Never thought about sleep apnea thinking it was just very obese men who snore a lot. Over the past four years I’ve learned so much! CPAP has literally given me back my life. 🙂

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  3. Mary Lou… thank you so much for posting this. I have wondered for some time if my husband suffers from sleep apnea of some sort. His snoring has worsened over the years – he gets up multiple times during the night – his moods are varied – and he takes at least one nap a day if not two. He was last checked about five years ago… but I think he qualifies for a recheck. Your story – and informational graphics – will be helpful in convincing him to go to the doctor. I cannot thank you enough!

    I’m SO glad they were able to regulate your heart – and I hope they can tweak meds soon.

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    • Thank you Molly! My symptoms were more heart related so when they said I had Severe Sleep Apnea I was amazed. Wish they had caught it long ago. It’s worth it for your husband to ask about a sleep study.

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  4. This article is extremely useful for anyone who has such symptoms and doesn’t know the cause. Sad to say, even the doctors sometimes miss out on accurate diagnoses, probably because the symptoms overlap in other conditions too like heart disease. Thank you for sharing your experience and i am sure many others will benefit from this article.

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    • Thank you premsank. I’m learning that Obstructive Sleep Apnea is very complex and connected to so many other diseases. The earlier it’s diagnosed and treated the better the outcome. I never heard about it until four years ago when I was diagnosed.

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  5. Hi Mary Lou, my husband just had a sleep study and will get the results on Monday. Thanks for such an informative article as I’m sure most people don’t even know what sleep apnea is. Have a great weekend!

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  6. Wow, I had no idea sleep apnea could have such far reaching effects. I’m glad you finally got the help you needed and that it resulted in a marked increase in your symptoms and overall health. I myself was tested a few years back, but everything was normal. I appreciate you sharing this important information for others. I’ll share on Twitter.

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  7. Mary Lou, that is an excellent article. I hope it helps many people who may be struggling with the health symptoms you describe. I will definitely share this!❤️

    Sent from my iPhone

    >

    Liked by 1 person

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